The Asian Prostate Cancer (A-CaP) Study is an Asia-wide prospective registry study for surveying the treatment outcome of prostate cancer patients who have received a histopathological diagnosis. The study aims to clarify the clinical situation for prostate cancer in Asia and use the outcomes for the purposes of international comparison. Following the first meeting in Tokyo on December 2015, the second meeting in Seoul, Korea 2016, the third meeting in Chiang Mai, Thailand, on October 2017, the fourth meeting was held in Seoul, again on August 2018 with the participation of members and collaborators from 13 countries and regions. In the meeting, participating countries and regions presented the current status of data collection and the A-CaP office presented a preliminary analysis of the registered cases received from each country and region. Participants discussed ongoing challenges relating to data cleaning and data up-dating which is the next step of the A-CaP study following the data collection phase between 2016 and 2018. There was specific difference in term of the patient characteristics, and initial treatment pattern among East Asia, Southeast Asia and Turkey, and Jordan. Finally, a close relationship between prevalence of PSA test and disease stage of the patients at diagnosis in Japan and Malaysia was discussed.
Citation: The eighth report of the National Eye Database 2014. Goh PP, Salowi MA, Adnan TH, Sa'at N, editors. Kuala Lumpur: Clinical Research Centre; 2016
Citation: The ninth report of the National Eye Database 2015. Goh PP, Salowi MA, Adnan TH, Sa'at N, editors. Kuala Lumpur: Clinical Research Centre; 2017
Citation: The tenth report of the National Eye Database 2016. Goh PP, Salowi MA, Mokhtar A, Adnan TH, Sa'at N, editors. Kuala Lumpur: Clinical Research Centre; 2018
Citation: The second annual report of the National Eye Database 2008. Goh PP, Livingstone BI, Hussein E, Ismail M, editors. Kuala Lumpur: Clinical Research Centre; 2010
Citation: The first annual report of the National Eye Database 2007. Goh PP, Hussein E, Mustari Z, Ismail M, editors. Kuala Lumpur: Clinical Research Centre; 2008
Citation: Malaysian National Cancer Registry Report 2012-2016. Putrajaya: National Cancer Institute, Ministry of Health, Malaysia; 2019.
Older versions:
1. Lim GCC, Yahaya H, Lim TO. The first report of the National Cancer Registry-cancer incidence in Malaysia 2002. Kuala Lumpur: Clinical Research Centre; Ministry of Health Malaysia; 2003.
http://www.crc.gov.my/documents/report/1st%20National%20Cancer%20Registry.pdf
2. Lim GCC, Yahaya H. Second report of the National Cancer Registry-cancer incidence in Malaysia 2003. Kuala Lumpur: Clinical Research Centre; Ministry of Health Malaysia; 2004.
http://www.crc.gov.my/documents/report/2nd%20National%20Cancer%20Registry.pdf
3. Zainal Ariffin O, Nor Saleha IT. National Cancer Registry Report 2007. Putrajaya: National Cancer Registry, Ministry of Health, Malaysia; 2011.
https://www.dropbox.com/s/0pnx95wpi96rz51/MOH2011_National%20Cancer%20Registry%202007.pdf?dl=0
4. Malaysian National Cancer Registry Report 2007-2011. Putrajaya: National Cancer Institute, Ministry of Health, Malaysia; 2016.
https://drive.google.com/file/d/1pCsJIw0ysFccCMFA0XqzfbYu1OFDRbO_/view
Registration of research proposal to a publicly accessible website with searchable function allows information sharing and ensures research transparency. The National Institutes of Health Malaysia, realising the importance of research registration, established the National Medical Research Register (NMRR) in 2007. The NMRR functions more than just a local register: it also links to ethics approval and MOH medical research grant application. It thus facilitates researchers in their application to the Ministry of Health Research and Ethics Committee (MREC) and for Ministry of Health research grant. In addition, MREC committee members can review research protocol on NMRR website, thus saving much time and resources. From May 2007 till December 2009, more than 3000 people have registered as NMRR public users and more than 1000 research proposals have been uploaded in NMRR. The number of registration of research proposals, clinical trials and industrial sponsored trials steadily increased from year 2007 to year 2009. The web-based NMRR is the first research register in the world that links research proposal registration to ethical review and research grant application. Its future plan is to be linked with publication. Therefore, it is indeed an innovation that Malaysians should be proud of.
To determine the clinical and epidemiological characteristics of patients seen with primary immunodeficiencies referred at four Malaysian Hospitals between 1987 to 2007.